After 6 plus weeks for this hospital stay, one transplant and several obstacles later....
I am going home today!
Happy anniversary,Loren. I love you.
Tuesday, December 30, 2014
Friday, December 26, 2014
Looking Good
Our early Christmas miracle continues...
On Monday I was given clearance after a clean scope and no active GVH found to start drinking water again! Water never tasted so good! It took me about 5 hours to drink about a cup of water but I think my stomach had probably shrunk to the size of a lima bean. Thankfully my gut has agreed with the food and each day I have been able to advance my diet to new foods. Tonight I get chicken noodle soup! Yesterday I had mashed potatoes for Christmas dinner and was thrilled. As long as things keep progressing as they currently are I will hopefully be home soon.
Today marks 30 days since transplant and what a ride it has been. I was talking with my friend Natalie today and we were talking about how this feels like somebody else's life, that somehow I will wake up from this dream. I know that this is my life for now but it sometimes still feels surreal. I never thought that cancer would be part of my life or sidetrack my life like it has. I feel like it will take a good while to process all that has happened, everything I have felt and everything we have received from all of you.
Hopefully 2015 will be a year of healing. Love to you all!
#WendiWillWin
On Monday I was given clearance after a clean scope and no active GVH found to start drinking water again! Water never tasted so good! It took me about 5 hours to drink about a cup of water but I think my stomach had probably shrunk to the size of a lima bean. Thankfully my gut has agreed with the food and each day I have been able to advance my diet to new foods. Tonight I get chicken noodle soup! Yesterday I had mashed potatoes for Christmas dinner and was thrilled. As long as things keep progressing as they currently are I will hopefully be home soon.
Today marks 30 days since transplant and what a ride it has been. I was talking with my friend Natalie today and we were talking about how this feels like somebody else's life, that somehow I will wake up from this dream. I know that this is my life for now but it sometimes still feels surreal. I never thought that cancer would be part of my life or sidetrack my life like it has. I feel like it will take a good while to process all that has happened, everything I have felt and everything we have received from all of you.
Hopefully 2015 will be a year of healing. Love to you all!
#WendiWillWin
Friday, December 19, 2014
The battle with GVH continues
My battle with graph vs host disease (GVH) continues. I feel mostly okay except for my gut which is where the GVH is hanging out. We've been treating it for over a week with steriods with some effect but not the complete effect we need. My colon and large bowel need to start working again and they are being very slow coming online. AAARRGGHHH!!!! This means I am limited to a diet of ice chips and occasional sips of water. Don't feel bad....food doesn't sound that good right now. I wish that it did. Because of the GVH I won't be going home any time soon (at least within the week) so this year Christmas willl be spent at LDS hospital....still working out the details. But our familly will be together which is the most important part.
I am learning a lot about patience and faith and the strength that comes through friends and family. There is power there to pull me out of dark places and to keep me out. I am grateful to be part of such a wonderful network of people who are uplifting and loving. Thank you for being my friends.
#WendiWillWin
I am learning a lot about patience and faith and the strength that comes through friends and family. There is power there to pull me out of dark places and to keep me out. I am grateful to be part of such a wonderful network of people who are uplifting and loving. Thank you for being my friends.
#WendiWillWin
Thursday, December 11, 2014
update
No posts for the past little since i have had a rough litte bit. Mucositis hit pretty hard and took the ability to swallow, talk, or sleep for several days. The only way to get rid of it is to have your white blood cells and neutrophils come in and then they can repair the sores. I was very grateful to see those little neutrophils and to know that perid of pain pumps and suction would soon be over.
Unfortunately it was quickly followed by graft vs host disease. this requires complete gut rest for a few days...not a big deal, i haven't had anything to eat or drink for several weeks. Graph vs host is treated with heavy duty steroids followed by slow introduction to food. Hopefully it will go quickly.
Thank you for all of your support.
#WendiWillWin
Unfortunately it was quickly followed by graft vs host disease. this requires complete gut rest for a few days...not a big deal, i haven't had anything to eat or drink for several weeks. Graph vs host is treated with heavy duty steroids followed by slow introduction to food. Hopefully it will go quickly.
Thank you for all of your support.
#WendiWillWin
Subscribe to:
Posts (Atom)